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The following information resource links are being provided (alphabetically, by types) for your convenience in becoming better informed and more pro-active about managing your helath and that of your loved ones. If you would like to suggest additions to this list, please e-mail the details to , including the relevant Web site name(s). (Please see the disclaimer at the bottom of the page.)
Organizations Related to the Urinary Tract
Interstitial Cystitis Support Groups
Citrus Valley IC Support Group
http://www.icaction.com
Orange County IC Support Group
http://www.orco-ic.org
San Diego IC Support Group
http://www.groups.yahoo.com/group/ICSanDiego
Also see the Interstitial Cystitis Association and Interstitional Cystitis Network in the next section
Support group leaders: Would you like to have your group listed in our guide? Email us your contact information (and website if you have one) and we will be happy to post it here. You can reach us at .
Associations and Other Organizations
American Foundation for Urologic Disease (AFUD), Baltimore MD
http://www.afud.org
Medical research and education organization working to broaden the base of urological research and enhance public and health care providers awareness of urologic disease in the U.S.
Bladder Disorders.com
http://www.bladder-disorders.com/
Chronic Pelvic Pain Forum
http://www.chronicpelvicpain.us/
IC and OAB Resource Center � Canada
http://www.canadaic.com/
Services interstitial cycsitis and overactive bladder patients in Canada.
IC Hope
http://www.ic-hope.com/
Intercyst.org
http://www.intercyst.org/
Interstitial Cystitus Association (ICA), Rockville MD
http://www.ichelp.org/
Support network for patients suffering or suspected of suffering from interstitial cystitis. Works to inform the public and especially the medical profession about the seriousness of IC.
Interstitial Cystitis Information Center
http://www.moonstar.com/~icickay/index.html
Interstitial Cystitis Network (ICN), Santa Rosa CA
http://www.ic-network.com/
A robust, informative Web site dedicated to providing resources to people with interstitial cystitis, painful bladder syndrome, pelvic pain syndrome, and overactive bladder.
MedLine Plus
http://www.nlm.nih.gov/medlineplus/interstitialcystitis.html
National Bladder Foundation
http://www.bladder.org/Interstitial%20Cystitis.html
National IC Organizations & Resources
http://www.interstitial-cystitis.org/othergroups.html
World-wide list of IC organizations.
National Kidney and Urologic Diseases Information Clearinghouse: http://kidney.niddk.nih.gov/kudiseases/pubs/interstitialcystitis/index.htm
Urology Channel
http://www.urologychannel.com/interstitialcystitis/index.shtml
Vulvar Pain Foundation, Graham NC
http://www.vulvarpainfoundation.org
Addresses women who have vulvar pain and related disorders (fibromyalgia, interstitial cystitis, irritable bowel), family members, and interested health care professionals. Educates patients, physicians, and the public about successful treatment and current research.
Yahoo Directory (interstitial cystitis) http://d1.dir.scd.yahoo.com/health/ diseases_and_conditions/interstitial_cystitis/
Yahoo Directory (urinary frequency and urgenty)
http://health.yahoo.com/health/encyclopedia/003140/0.html
Women's Diagnostic Cyber (about IC)
http://www.wdxcyber.com/dxurp003.htm
Organizations Related to the Digestive System
About GERD
www.abourtgerd.org
International Foundation for Functional Gastrointestinal Disorders (IFFGD), Milwaukee WI
http://www.iffgd.org
Promotes gastrointestinal disorders research and provides a voice for patients.
Jackson Gastroenterology
http://www.gicare.com
National Digestive Diseases Information Clearinghouse (NDDIC), Bethesda, MY
http://www.niddk.nih.gov
An information and referral service of the National Institute of Diabetes and Digestive and Kidney Diseases. Serves as a central information resource on the prevention and management of digestive diseases.
Pediatric/Adolescent Gastroesophageal Reflux Association (PAGER)
http://www.reflux.org
Provides information and support to parents, patients and doctors about Gastroesophageal Reflux.
General Health and Wellness Organizations
American Council on Health and Science
http://www.acsh.org/
American Heart Association
http://www.americanheart.org
Centers for Disease Control and Prevention
http://www.cdc.gov
Better Bones
www.betterbones.com
CNN Health
http://www.cnn.com/HEALTH/
Discovery Health
http://health.discovery.com/
Dr. Koop.com
http://www.drkoop.com
Jackson Gastroenterology
http://www.gicare.com
Friends Health Connection (FHC), New Brunswick NJ
http://www.friendshealthconnection.org
Network that provides emotional support for individuals who suffer from or have overcome a common disease, illness, handicap, or injuries from an accident. Matches persons on a one-to-one basis according to age, health problem, interests; also connects caregivers.
Health AtoZ
http://www.healthatoz.com/healthatoz/biz/index.html
Health Web
http://www.healthweb.org/
IVillage Health Website
http://www.ivillagehealth.com
Mayo Clinic
http://www.mayoclinic.com/
Medline Plus (a service of the U.S. National Library of Medicine and the National Institutes of Health)
http://www.reutershealth.com/en/index.html
Merck Source
http://www.mercksource.com/pp/us/cns/cns_home.jsp
National Institutes of Health
http://www.nih.gov
National Kidney Foundation, New York NY (+ many state chapters)
http://www.kidney.org/
Supports research, patient services, professional and public education, organ and tissue donor program, and community service. Affiliates conduct community and patient services.
National Wellness Institute, Stevens Point, WI
http://www.nationalwellness.org
Purposes are to provide national leadership in the wellness movement; to assist professionals working in health and wellness promotion in all types of settings; and organizations with planning, development, implementation, and evaluation of wellness programs.
National Women's Health Information Center
http://www.4woman.gov
Stanford School of Medicine
http://www.med.stanford.edu
ReutersHealth
http://www.reutershealth.com/en/index.html
Web MD
http://www.webmd.com
Wellness Councils of America
http://www.welcoa.org/
Wellness Community
http://www.thewellnesscommunity.org/
Disclaimer: The above list of health information resources is provided for your convenience only. The information provided by these sources not been reviewed by pH Sciences (an impractical task, given the volume of ever-changing information available), and we assume no responsibility or liability for the accuracy or completeness of the information contained therein or the usefulness or safety of any advice that they might provide. As always, please consult your health professional before following any advice pertaining to your health and wellness.
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